A first time marathon runner from Edinburgh took to the streets of New York to raise funds for the Scottish Huntington’s Association (SHA).
Lisa Carrigan (33) has now totalled her funds from the race back in November and has collected £1800 for the charity to help support families living with the degenerative neurological condition, Huntington’s disease (HD).
An occupational therapist, Lisa has seen first hand the impact that HD can have on individuals and families.
“I was really surprised to get a selected for the race as demand for places is huge but once the application was accepted there was no going back,” said Lisa who has completed half marathons before but never the full race.
“I have worked within neurological units in hospitals across the Lothians and have become very aware of just how devastating HD can be. The SHA does great work with families affected and I really just wanted to do something to help.”
Lisa completed the 26.2 mile course in 4 hours 30 minutes which was around what she had expected.
“The crowds were amazing in cheering all the runners on, they really helped me stay motivated. It was an experience I’ll never forget and I’m just glad to be able to raise some much needed funds, so big thanks to everyone who had faith in me.”
The charity is the only one in the country supporting families living with HD.
It is a hereditary, progressive condition that causes changes to muscle control, thinking processes and may cause long-term mental health issues, there is currently no cure. Those living with the condition will require 24 hour care as it progresses into its later stages. It is also hereditary with each child of someone diagnosed with HD is at 50% risk of developing the condition themselves. Prevalence of HD has increased threefold in the last twenty years and there are an estimated 1100 people in Scotland living with the condition and as many as 5,000 potentially at risk.
“Lisa’s efforts are really appreciated but people don’t need to go all the way across the Atlantic to support us, we can support fundraisers doing all sorts of events a little bit closer to home as well,” said SHA’s community fundraising officer, Linda Winters.
Contact Linda at email@example.com if you are interested in fundraising.