Our History

The Scottish Huntington’s Association (SHA) was formed in 1989 by families living with the disease. In 1992 the first part-time professional advisor was employed, funded by Mental Illness Specific Grant, to identify need in Lothian. In 16 years and following a considerable amount of hard work from families and professional staff. The Association provides expert care to families living primarily in their own homes. Just as importantly, support is offered by families for families via a network of local family support groups.

Sarah's Story
Sarah Winkless, Olympic Bronze Medalist Rowing
Champion and HD gene carrier.

In my early teens, there was a change in Mum. Her behaviour became strange and erratic; she was prone to mood swings and seemed to lose the natural grace of her movements. This was my introduction to Huntington’s disease. Read more...